I did not post my labs from my visit back on February 5, 2018 because they were boring. The labs from August 6, 2018 were beyond boring; there were regressive! What the fuck?
In June of 2015, after my initial diagnosis by Dr. Gene Pashold, it was suggested that seven years might be my life expectancy. Today I'm three plus years into that time period but so far my LGLL has remained indolent and even somewhat regressive. I.e., my white cell and lymphocyte counts are actually down since my previous visits. Not to flog a dead horse, but please see the sidebar and graphs to see of what I speak. I remain asymptomatic and pretty healthy.
So where does this leave me? Should I rail against the fates for denying me some medical drama in my life? What's more dramatic than having a life shortening/threatening, rare blood disease? I want my drama!! As it did after the initial diagnosis, it makes me introspective. My life, for the most part, has been pretty devoid of drama as related to health issues. Life with some real drama is what makes a life interesting, right? Who the hell wants to read a blog about someone with a rare blood disease that seems as healthy as someone without it? It's an outrage!
There are so many LGLL patients out there who are sicker than shit; younger than me and older than me. Why have the fates dealt me a rare blood disorder then taken away the entire basis for my blog? I.e. the suffering, the pain, the indignity. Someone much more worthy should be writing this blog. Someone who is anemic. Someone who has hemophilia. Someone who suffers silently awaiting the doom of their lifetime to swallow their existence and render them an historical, medical statistic. How many of these sicker LGLL patients would trade places with me in a heartbeat? All of them, I'm sure. If I believed in blessings they would admonish me to count mine and shut the fuck up.
My next appointment is in February 2019 with the illustrious Dr. Ellis at WFBH Comprehensive Cancer Center. My last six months checkup was actually with the PA, Ms. Barber. Talk about adding insult to non-injury! My LGLL is so pathetic I've even been relegated to a lowly PA. Sigh. I'm healthy and I'm grateful for it so I'll continue to write posts about being a 'survivor'.
About Me
- Wayne Turner
- I was born, raised and went to school in eastern NC. Too immature at 17 to comprehend the seriousness of university life, I dropped out after two years and joined the Air Force. I spent two years of my four year military career in Germany, which I enjoyed immensely. I completed my Bachelor's Degree at Guilford College in 1985. My first career was in the computer field where I did everything short of design one. I've spent the last 30 years in the environmental field working for local governments. In December 2017 I retired from full time work. My overdeveloped sense of fairness and justice lands me on the liberal side in my political views. I think government plays a large role in social responsibility in a civilized state. I believe in the innate compassion and goodness in everyone despite the daily news reports to the contrary. My genetic predisposition for generosity in nearly all things is sometimes a source of future angst. I've been a musician and still have a deep love of music. I am naturally curious about all things especially metaphysics and science.
